The Good, The Bad & The Ugly

. The Good I saw Dr. Bains yesterday and had a chest x-ray at MSK.  The good news is that my lung has stayed inflated at 85% over the last week and is stable.  I also got my labs drawn and the best news is that my tumor marker (HCG) is "< 2.0 / undetectable"!!!  This is a huge milestone and … [Read more...]

Home!

Yesterday, after my lung decided to stay mostly inflated (85%) when removed from suction, I was discharged and home by nightfall! It feels so good to be here, see the animals, go for a walk by the pond, sleep in our bed, witness the vanguards of Spring, not be woken up every few hours and notice … [Read more...]

Slowly Coming Alung

I can see the East River, the 59th St. Bridge and Roosevelt Island from the chair in my hospital room. Traffic is not too bad right now, the tide is going out and all is groovy. I am feeling so much better than I was last week and my digestive system is up and running -i am eating regularly and … [Read more...]

How it’s going

Going on 6 days in the hospital now, so I thought it was time for a little update. It turns out the last-minute surgery was a very good call. Had the intestines remained twisted for another 6-12 hours, they might have needed to be removed in pieces: a much more complex surgery with a greater risk … [Read more...]

All is well

Jay just got out of surgery.  Dr. Philip Paty and his team took very good care of him.  There were not one but three obstructions: bands of adhesions that formed after his abdominal surgery, so it was a really good thing he went into surgery when he did.  This explains why Jay has been in so much … [Read more...]

Surgery Tonight

Hi all, Jay's team of very competent doctors all came into agreement today that surgery to repair his twisted intestine was probably inevitable and ideally, the sooner the better so as to avoid more serious issues.  So we made the decision tonight to go ahead with the surgery right away.  Jay … [Read more...]

Obstruction of Juices

Not too long after my last post, when I felt out of the gastrointestinal woods, the abdominal pain returned. It gradually got worse until yesterday we checked into urgent care at MSK. A CT scan revealed a bowel obstruction caused by adhesions which are latent side effects from the RPLND. A kink in … [Read more...]

No Sign of the Enemy

Despite the reservations I share with this fellow in regards to using combat metaphors for cancer it sure as hell sometimes feels like an enemy. And in the past week there have been two very encouraging pieces of intelligence gathered on the enemy’s movements (or lack thereof I should say!). The … [Read more...]

Home safe and sound

Hey all, Just a quick note to say that Jay returned home safe and sound this afternoon, driven by his parents and my sister (I had to go back to work this week).  We are so grateful for their support and for everyone who buoyed us up during these past 10 days (friends, family, nurses, doctors, … [Read more...]

Come see the mythical unicorn slippers and the man who dances in them.

Am going back to work tomorrow and don't want Jay to be dancing in his unicorn slippers all by himself... … [Read more...]

Compare & Contrast

Yesterday ____________________________________ Today ____________________________________ https://www.youtube.com/watch?v=oKMvUfNICtM (may need to view on the web to see the video above) Hopefully tomorrow my chest drain comes out and I'll be home in short order.  Still waiting on pathology … [Read more...]

visitors welcome!

Hi all, Thank you so much for all of the love and support you’ve been sending our way!  Jay is ready for visitors and would love to see you. If you’d like to visit, pick a time below, check my follow-up email for details and confirmation and come on by! Love and gratitude, KR … [Read more...]

Good News!

Notes from postop discussion with Dr. Bains Was he stable throughout the surgery? Yes, very stable Any blood transfusions necessary? No, lost very little blood (160cc) Any difficulty removing mass near the pericardium? No trouble at all How many masses removed? 24 When will we … [Read more...]

Update

Just got the call that they are closing Jay up.  I'll speak to the surgeon in the next hour and let you know what he says.  Keep sending love Jay's way; it works!  In the meantime, here is a presurgical selfie from this morning when we were brighter eyed and bushier tailed: love, KR … [Read more...]

Good To Go

Just got the call from MSK with confirmation and final time for tomorrow's surgery: 9:30am arrival, 11:30am slice n' dice.  Surgery should be 2-4 hours so if you have any extra white light hanging around feel free to shoot it over my way  during that time (68th and 1st, c/o KR).  I feel prepared and … [Read more...]