Welcome to a place to share our story and updates with friends and family as we move through this journey. If you would like to get email updates, please sign up with the form at the bottom of the page or on the side of the post pages.

thank you, thank you, thank you for all of the love and support

(the image on the left is from our motorcycle trip out west last summer, that was the first place we stopped for lunch…)

Riding for Survival

March 6, 2020 By

I am writing after just moving back to Pawling, NY from Buenos Aires, Argentina where we spent a year living and our final 3 weeks camping in Patagonia (pic below at El Chaltén). We drove 2,000 miles to the end of the southernmost road in the world. I was back in NY in December of […]

Celebrating 5 Years & Riding with the Nutcrackers

February 24, 2019 By

When my family and I sat down for dinner last night my daughter, Juniper, asked me why I was crying. “Because I am so happy and grateful we are all here,” I told her. It was our first meal in our new house in Buenos Aires where we are living for a year and as […]

A Very Happy New Year

December 31, 2017 By

I am at my wife’s childhood home in Minnesota watching the sun drop slowly behind the bare trees for the last time in 2017.  As I reflect on the year during this rare moment of quiet (one daughter is napping, the other playing with her grandmother) I am overwhelmed again with gratitude.  I think of […]

The Nutcrackers Ride Again

February 4, 2017 By

It has been almost a year since I posted here and a wonderful year it has been.  I remain free of any evidence of disease and a few months ago graduated from getting tested every 3 months to every 6 months which feels great.  I had the privilege of doing a few readings from BLOOM […]

Someone Told Me It’s All Happening At The (terato)Zoo(spermia)

March 3, 2016 By

All clear again two weeks ago for my quarterly tests!  Despite being in a relative safe zone,  my sense of relief and comfort always deepens when I get the news and my gratitude and joy ratchets up. As I sat in the waiting room at MSK a young man huddled with his parents after receiving […]