No Sign of the Enemy

Despite the reservations I share with this fellow in regards to using combat metaphors for cancer it sure as hell sometimes feels like an enemy. And in the past week there have been two very encouraging pieces of intelligence gathered on the enemy’s movements (or lack thereof I should say!). The … [Read more...]

Compare & Contrast

Yesterday ____________________________________ Today ____________________________________ https://www.youtube.com/watch?v=oKMvUfNICtM (may need to view on the web to see the video above) Hopefully tomorrow my chest drain comes out and I'll be home in short order.  Still waiting on pathology … [Read more...]

Good To Go

Just got the call from MSK with confirmation and final time for tomorrow's surgery: 9:30am arrival, 11:30am slice n' dice.  Surgery should be 2-4 hours so if you have any extra white light hanging around feel free to shoot it over my way  during that time (68th and 1st, c/o KR).  I feel prepared and … [Read more...]

It’s Gonna Be A Lung Day

Just got scheduled for my open-chest (left) lung surgery for next Wednesday 3/19.  It is sooner than we expected but it will be good to get it done and then have only one surgery left (well, the right one will be left to be exact).   It will be at the main MSK hospital in the operating room next … [Read more...]

A Party Indeed

It’s Sunday morning at Equinox Graybar near Grand Central and the roof is being decidedly raised. We walk into the space where maybe a hundred stationary bikes are set up for one of 41 rides nationally as part of Cycle For Survival and it feels like entering a nightclub. The bass is pumping, the … [Read more...]

Once More Unto The Breach

…make that twice more. It turns out I am going to have two more major surgeries: left lung and right lung thoracotomy. Due to the number and size of the masses in my lungs it has to be old school, non-robotic style. That means slicing between ribs, spreading them open with a mechanical spreader, … [Read more...]

Better Every Day

Hey lovers! Hope everyone had a warm Valentine’s day yesterday. Good news this week - my tumor marker was down to 4.7 on Thursday and CT scan at the same time showed an approximate 20% reduction in all lung masses as compared to a month ago! They saw some fluid around my kidneys and Dr. Sheinfeld … [Read more...]

Ooooof

Wow - what a week!  A lot of ups and downs.  We have been home since Wednesday night and the surgery recovery continues. A week ago at about this time I was coming in and out of consciousness in the the post-surgery recovery room after having just been stapled back up. The surgery was successful and … [Read more...]

Game Day

Hey Team! So tomorrow is the big day - RPLND + orchiectomy and I’ve got all my stuff for a week in the joint laid out. We’ll arrive at the hospital at 5:45am, the slice and dice should begin around 8am and it should last ~5 hours. If you have a minute during that window sling some good vibes over to … [Read more...]

Goodbye Old Friend

Next Friday the 24th I go under the knife. I am excited to be getting to this important milestone in my treatment and preparing myself through exercise, yoga, mediation and diet. But as the day approaches I find myself more anxious. I have been trying to get to the root of it. Certainly being … [Read more...]

Keeping Warm in the Cold

Hey y’all - happy new year! Hope everyone had a wunderbar holiday season and those in the grip of the current cold snap are staying warm. Since my last update nothing too major has happened on the medical front. My tumor marker continued it’s “soft landing” and dropped to 17 as of last Thursday. … [Read more...]

Balls of Light in the Darkness

Hi Team! I am watching the snow fall again today and thankfully my tumor marker is doing the same - it was at 26 yesterday!  I  know it has been a few weeks since the last post.  I do get tested usually every week and generally post the results to the medical info page by Tuesday morning so you can … [Read more...]

Feeling the Plenitude

Howdy Team!  As of yesterday my tumor marker was just under 50 (49.8 to be precise) which means it's still continuing to pace well and we may just be a few weeks away from the range where MSK will green light the RPLND surgery.  My football self can feel some downhill momentum as we cross this 50 … [Read more...]

Monday Funday

Yesterday was a great day. For the last 3 months I have gotten chemo every Monday. But not this week! Yesterday we traded that in for a heaping measure of good news. KR and I reviewed my CT scan results with Dr. Feldman and he was happy with how everything looked. The tumor masses have reduced in … [Read more...]

Chemo No Mo

Yesterday was my last day of chemo! It came in the form of my weekly push of bleomycin and it felt glorious. My nurse for the day, Sita, had to hunt to find a last viable vein (most of them from my elbows down have sclerosis from the cisplatin chemo) but, being the vein whisperer, she found a good … [Read more...]