Monday Funday

Yesterday was a great day. For the last 3 months I have gotten chemo every Monday. But not this week! Yesterday we traded that in for a heaping measure of good news. KR and I reviewed my CT scan results with Dr. Feldman and he was happy with how everything looked. The tumor masses have reduced in … [Read more...]

Chemo No Mo

Yesterday was my last day of chemo! It came in the form of my weekly push of bleomycin and it felt glorious. My nurse for the day, Sita, had to hunt to find a last viable vein (most of them from my elbows down have sclerosis from the cisplatin chemo) but, being the vein whisperer, she found a good … [Read more...]

4th Quarter

I am resting in bed on day 4 of my last 3-week cycle. I had a smooth day at the chemo barn at MSK. It took a while to find a viable vein (they get hardened from the chemo) but luckily I only have one more day of the intensive 4-hour drip and then just two shots the following Mondays. I had a great … [Read more...]

Go Deep

Hey team! Just wanted to check in with the latest. I've been feeling great the last week or so and able to go for long walks and do some work around the house: getting the firewood together, clearing trails, etc. My tumor marker was down to 311 on Monday. The rate of decline slowed a bit from the … [Read more...]

Not an Open Letter to Miley Cyrus

They said the third cycle would hit harder.  They were right - the last few days I was pretty wiped out.  I may have set a personal sleep record with a good 19 hours of rack time on Sunday!  My energy level is better today and I'm looking forward to the end of this week when my immune system and … [Read more...]

Roar

Hey gang - just started cycle 3 of 4 so I am now over halfway there!  Also my tumor marker (HCG - indicator of the number of live tumor cells) is down to 864 as of yesterday!  After my last test I was a bit concerned about the pace of decline slowing down but my doc says it's common to see a slow … [Read more...]

Fighting the Fight and Lighting the Night

I saw my doc yesterday and good news on two fronts: 1) my immune system is back in the green and on the upper end of normal ranges and 2) my tumor marker is down to 1,765 from 3,143 a week ago (details here).   A part of me was a little disappointed in the tumor marker number because it seems like … [Read more...]

Hump Day

So they tell me I am not supposed to be feeling so hot today but I feel good! It is day 10 / hump day of cycle 2 chemo  and based on cycle 1 my immune system should be crashing (I started taking antibiotics this morning as a precaution and will hopefully avoid the hospital this time!). I am not … [Read more...]

The Latest

1) News I just finished 5 days of the intensive chemo and it all went well.  I was able to go in for 4 hours to the chemo room at MSK Kimmel center on an outpatient basis and KR had a crack team of folks who drove me to and from MSK and Pawling (many thanks for the rides guys!).   It's day 6 of … [Read more...]

Tumor Cells – Over 90% Off!

Hey team - the last week has been great!  My immune system was back along with my energy levels. I went for hikes (including a 5-mile) and practiced yoga almost every day. But here's the best part: my tumor marker (HCG), which is the best indicator of the number of live cancer cells, went from … [Read more...]

Hail the Phagocytic Laborers

After a few days in the hospital and being fed immune-building soups and snacks by my #1 nurse my immune system came back online yesterday morning (neutrophil count up above 1300 from 490) and I was release on my on recognizance. My friend Dov and his daughter Riley graciously gave me a ride home … [Read more...]

Shrink

Went into MSK today to meet with the good doctor and get a chemo shot (bleomycin). Doc palpated my larger tumor and said he was sure it was shrinking!  My sister drove me in, we sang on the way.  She drew this as I was on the drip: It's her birthday tomorrow and I for one am so damn glad she … [Read more...]

Home

We got home Saturday late in the day.  What a pleasure to be in familiar space, quiet replacing the buzzing and beeps of the ICU, welcomed by some cheery banners and cards.  I was wiped out and have had varying degrees of "chemo-brain" the past few days - moments where my CPU seems to be operating … [Read more...]

Homeward Bound

All packed up and dressed, waiting on final discharge before the drive north. A couple of pics here from just after the last bag of chemo for this cycle finished. Still feeling pretty good and so grateful for that. … [Read more...]

Floating Upriver

Day 4 of chemo and feeling good so far. I feel somewhat tired from the emotional/mental stress, the environment of the hospital, probably the chemo and counter-meds but I also feel energized and lighter somehow - and I think it is because these tumors are diminishing in haste. The pain I had in my … [Read more...]