Giving Thanks

I Hey team! It has been a long time since I’ve posted and I hope I haven't caused any worry in the interim. My health is great - official cancer status is "confirmed complete remission" (which is pretty much as good as it gets). I am now in "surveillance" with monthly blood tests and x-rays and … [Read more...]

You Can Call Me NED

One year ago today at around 6pm I was in the orchard staking a young tree in an attempt to get it to grow straight when the phone rang. I let it go to voicemail deeming my arboreal correction of greater importance. The phone rang again.  This time I went inside and looked at the caller ID which … [Read more...]

Home sweet home!

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When the Sun Shines, We’ll Shine Together

Hey all, Good day today!!  Jay got his chest tube and epidural out earlier in the day and we're making steady progress towards getting discharged from the hospital sometime tomorrow.  Also, he did a full two miles of laps around the floor, basking in the steady stream of praise for his … [Read more...]

All good

He did it! Jay is fresh out of surgery, doing great!!! Here are my notes from my post-op talk with Jay's amazingly gifted surgeon, Dr. Bains. Thanks for all of your good thoughts this morning. They helped! Also, stay posted for more visiting times later on today (this guy has so much support, … [Read more...]

Ready to fly

Hey team of big-hearted people, Jay headed into surgery at around 8:30 am. He's in the care of some pretty amazing people now: nurses, anesthesiologists and surgeons. And you! We received so many loving and soothing recordings over the past week and it makes me happy to think of those sweet … [Read more...]

One More Round

Hey team! Just a quick post to let you all know I am going in Monday, 8/4 for my right lung thoracotomy. It will likely be in the morning and should take 3-4 hours. The standard hospital stay is 3-5 days - I'm gonna try and make it 3. I feel strong and energetic in my body and am drifting towards a … [Read more...]

A Big Time

Summer is swinging and bursting open with dewy sweet mornings and evenings like molasses. A few weeks ago KR and I got married for realz on a day so filled with light and joy and smiles and hugs and tears that only the solstice could contain it all. It was a trifecta celebration of union, health and … [Read more...]

No, YOU Grow the Placenta

Hey Team! It’s been a beautiful, sunny, warm late Spring day -I can almost hear the trees and plants growing- and my cancer is nowhere to be found. I got a CT scan and labs and met with my Dr. Feldman (my oncologist) last week. My tumor marker remains in the undetectable range for the second time … [Read more...]

May Day

Last Thursday morning, May Day, I put on my rain boots and jacket and rode the rails to NYC through the tail end of a 2-day rain. Walking from Grand Central to MSK I noticed how slow I was moving. I have traditionally been one of the faster moving objects on a New York sidewalk but I was rolling at … [Read more...]

The Good, The Bad & The Ugly

. The Good I saw Dr. Bains yesterday and had a chest x-ray at MSK.  The good news is that my lung has stayed inflated at 85% over the last week and is stable.  I also got my labs drawn and the best news is that my tumor marker (HCG) is "< 2.0 / undetectable"!!!  This is a huge milestone and … [Read more...]

Home!

Yesterday, after my lung decided to stay mostly inflated (85%) when removed from suction, I was discharged and home by nightfall! It feels so good to be here, see the animals, go for a walk by the pond, sleep in our bed, witness the vanguards of Spring, not be woken up every few hours and notice … [Read more...]

Slowly Coming Alung

I can see the East River, the 59th St. Bridge and Roosevelt Island from the chair in my hospital room. Traffic is not too bad right now, the tide is going out and all is groovy. I am feeling so much better than I was last week and my digestive system is up and running -i am eating regularly and … [Read more...]

How it’s going

Going on 6 days in the hospital now, so I thought it was time for a little update. It turns out the last-minute surgery was a very good call. Had the intestines remained twisted for another 6-12 hours, they might have needed to be removed in pieces: a much more complex surgery with a greater risk … [Read more...]

All is well

Jay just got out of surgery.  Dr. Philip Paty and his team took very good care of him.  There were not one but three obstructions: bands of adhesions that formed after his abdominal surgery, so it was a really good thing he went into surgery when he did.  This explains why Jay has been in so much … [Read more...]